People living with a rare neurological degenerative disease have called on the Government to make the first treatment for the ...
The National Ataxia Foundation (NAF) is an organization devoted to raising awareness, supporting families, and funding research for Ataxia, a rare and progressive neurological condition that impairs ...
A panel of physicians, biotech leaders and patient advocates took aim at the FDA during a Senate hearing Thursday on how the ...
CHICAGO (WLS) -- The Friedrich's Ataxia Research Alliance (FARA) invites families, cyclists, and everyone else to their 5th Annual rideATAXIA Chicago event on July 24, 2016. The multi-route cycling ...
WOODBRIDGE, Conn.--(BUSINESS WIRE)--Cure Rare Disease (CRD) announced it has been awarded a $5.69 million grant from the California Institute for Regenerative Medicine (CIRM) to advance the ...
RICHFIELD, Wis. (CBS 58) -- The 4th Annual National Ataxia Bowl for a Cure will take place Sunday, Sept. 28 at Pioneer Bowl in Richfield from 11 a.m. to 4 p.m. The fundraiser supports research, ...
Ataxia is a degenerative disease of the nervous system. Symptoms include slurred speech, stumbling, falling and incoordination. Find out what the National Ataxia Foundation is doing to fund research.
The FDA has granted orphan drug designation to Cure Rare Disease’s CRD-002, an antisense oligonucleotide therapeutic for the treatment of spinocerebellar ataxia (SCA), including spinocerebellar ataxia ...
The Gehr family has always had a love and a talent for the performing arts. “I really lived a pretty unaffected life until about third grade,” said 25-year-old Michael Gehr. As a kid, Michael was what ...
The National Ataxia Foundation (NAF) is an organization devoted to raising awareness, supporting families, and funding research for Ataxia, a rare and progressive neurological condition that impairs ...
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